The Logic and Legitimacy of American Bioethics

by Mary R. Leinhos

Table of Contents

Chapter 1—Introduction

Research Questions

Bioethics and The Challenge of Speaking Truth To Power

Theoretical Approach

Methodology: Overall Approach and Justification


PART I: BIOETHICS IN THE UNIVERSITY COMMUNITY


Chapter 2—Establishment of an Academic Bioethics Center: Entrepreneurs of Ethics

Establishment of the Bioethics Center

Development of the Center: Financial and Intellectual Independence

The Organization and Institutionalization of the Bioethics Center at Letters University


Chapter 3—The Academic Bioethics Jurisdiction: A Strained Dialogue Among Disciplines

The Ambivalent Identity of Bioethicists

The Relationships Between the Bioethics Center and Other Jurisdictions

Conclusion


Chapter 4—Master’s Degree Programs in Bioethics: A Growing Franchise

Student Commentaries in the American Journal of Bioethics

The Master’s Program at Letters University

Conclusion


PART II: BIOETHICS and THE STATE


Chapter 5—Liability as Legitimacy: The Emerging Professional Jurisdiction of Bioethics in the Legal Arena

The Liability of IRBs

The Liability of Ethics Consultants

Conclusion


Chapter 6—Bioethics in Public Policy: The National Bioethics Advisory Commission and the Stem Cell Research Debate

Philosophers & Public Policy

The Functions of Executive Advisory Bodies

NBAC and the Embryonic Stem Cell Research Controversy

NBAC as a Boundary Organization

The Embryo as Boundary Object

Of Embryos and Oversight: The Implicit Morality of Bioethics in Public Policy

Standardized Packages: NBAC’s Recommendations

Conclusion


Chapter 7—Conclusion


Appendix A: Interview Schedules for The Bioethics Center Case Study

Faculty Interview Schedule

Staff Interview Schedule

Student Interview Schedule

Appendix B: Methodology—NBAC’s Deliberations on Embryonic Stem Cell Research

NBAC Meeting Transcript Summary Form

References

Index


 

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